My Story...

This site is dedicated to all lupus sufferers....

" The test results revealed you have lupus"

Hello my name is Kim and these were the words I heard from the doctor in October 1995. As the tears rolled down my face, the unknown certainty of what lupus means and wandering if I was going to die before my only daughter graduate from high school. A lot of thoughts pass through my mind back then. I just couldn't face the idea of being sick and wandering who's going to take care of my family.

It began with a large rash (the size of silver dollar) in my inner ears which I thought was an allergic rash from wearing headphones while listening to music at work and a small (itchy) sore on my forehead which continued to spread across my forehead from scratching which only made it worse. After numerous over the counter meds with no results, I decided it was time to visit the doctor. The doctor ordered several lab tests, which I'm sure many lupies can relate to. A week later I was called back into the office and the test results revealed "Ms. Kim I'm going to refer you to see a specialist (rheumatologist) , the test results revealed that you have lupus better known as systemic lupus erythematosus. or SLE." This is were my journey for lupus began.

There are several types of drugs used to treat lupus, inflammatory drugs, or NSAIDS, nonsteroidal anti-inflammatory drugs, antimalarials and corticosteroids, my lupie meds consist of:  Plaquenil, Accupril and Hydrochorothiazide  (HCTZ) which is used to control high blood pressure.

One way to manage lupus is to understand the importance of treatment to control the symptoms, prevent flares, treat flares when they occur, minimize complications and learn as much as you can about lupus from books, friends, family, doctor... read..read..search...search.

After the diagnosis, I've had to cope with symptom after symptom of lupus, flare after flare plus the anger, depression, fatigue, rashes, and the uncertainty, but through it all having a good support system is very important. A support system consist of having FAITH in the LORD... it was the touch of spirit that inspired me to lay my burdens onto him knowing that he'll take care of me always,  having the support from family, friends,  medical professionals, community organizations and organized support groups. Life with lupus is not easy, but I'm determined not to let it get the best of me.

To all lupus sufferers, the families and caregivers of those fighting this incurable disease you can be a part advocacy efforts. Become a lupus advocate and help to someday find a cure.........